splodgenoodles: (Default)
When I saw my gastroenterologist on Thursday, we mused on where things were at compared to where they were only a year ago.

About a year ago, I was steeling myself for major surgery. A full colectomy, no less. In fact, when I met Newboi!, part of my enthusiasm was the poignant sense of impending loss, and wanting to have a last, crazy romance before it became extremely unlikely that I'd have another.

(Mind you, while we were wandering down the street with an unspoken agreement something was likely to happen between us within a couple of minutes in the back room of a secondhand bookshop, I told him what I was facing, and gave him the offer of leaving quickly. He replied that he wasn't going anywhere. Within a couple of minutes we were in the bookshop, pashing in the literary criticism section because it's always deserted, and having a great old time. He later told me such a thing as a colostomy would not have put him off and I shouldn't worry too much about its likely impact on my sex life.)

The point being, that surgery is entirely *not* indicated now.

~~~

Touchwood!

~~~

And all because of a last attempt to get me well, a long shot, using a very old drug (allopurinol) that's no longer under patent and therefore dirt cheap, that they've found improves the efficacy of one of my maintenance drugs (Imuran).

And there are new treatments for Crohn's Disease coming out. Both rediscoveries of old drugs and better combinations, like the one that's helped me, and the development of new ones.

~~~

This is good.
splodgenoodles: (Sisyphus)
Today I saw an ENT specialist (Ear, Nose and Throat). I'm off for a CT scan next week, he suspects I have fungus in my sinuses.

He said it's a growing problem, either from antiobiotics in the food chain or just that no one really paid attention to the problem in the past. My suppressed immune system will, however, probably be contributing to the problem - not to bacterial infections, but to fungal ones.

If fungus is confirmed, he said I will be able to harvest and sell so long as I don't claim my product is organic. (What with all those food-chain transmitted antibiotics).

I might have imagined that last bit. It's possible that what he said was that I'll need sinus surgery, in which the fungus will be washed out with a terrifyingly powerful, repurposed fire hose.

It's also possible that I imagined that last bit, and that he didn't mention a repurposed fire hose at all. But he did mention that he has had the same surgery I'll probably be getting and that he's still here, so it can't be all that bad.

Actually, I definitely imagined that last bit - he only said he'd had the surgery itself. I'm just assuming that it didn't kill him and therefore can't be all that bad.
splodgenoodles: (Default)
My attempts to lower my heart-attack inducing cholesterol levels are being thwarted by my recent discovery:

pizza can be quite nice actually.

So long as it's a half-and-half gourmet from a particular local place. Half pescatore (fancy seafood) and half mediterranean. And unlike pasta, it's still good eating the next day.
splodgenoodles: (Default)
My attempts to lower my heart-attack inducing cholesterol levels are being thwarted by my recent discovery:

pizza can be quite nice actually.

So long as it's a half-and-half gourmet from a particular local place. Half pescatore (fancy seafood) and half mediterranean. And unlike pasta, it's still good eating the next day.
splodgenoodles: (Lady Penelope's car.)
We just walked around the block. I am so unfit. Hard for [livejournal.com profile] tenbears too, but only because he's not used to shambling. He seemed to have trouble knowing where to put his feet because his legs weren't moving far enough.

It kills me that going round the block is such a challenge for me. And that I'm secretly hoping that maybe someday soon I'll be able to do such a walk a couple of times a week with no payback. (Actually, what really kills me is that I assume that being well enough to do that would mean I'd have to get a job, pronto, and I don't feel quite ready...when really, being well enough to walk round the block three times a week hardly equates to being well enough to go to work. Logically speaking, I'm sure I've got a little bit more time before I need to buy an interview outfit. Like maybe, forever.)

~~~

And I've done another Scary Thing, go me. This was made easier when the process of getting it done became so damned fiddly that I wasn't so much anxious about the whole metathinginess of the activity as bored and pissed off and just wanting the fucking thing finished, FFS.

So now it's done.

~~~

Got an email today to tell me that I am not fructose or lactose intolerant, hurrah! Pardon me while I jump into a bath full of CAKE AND WHIPPED CREAM. (Cake containing wheat flour, you see, and wheat apparently being a problem in the fructose thing, believe it or not. Besides, jumping into a bath full of fruit and whipped cream just wouldn't have the same appeal, would it? Cake is much nicer, fruit is dull and unsexy).

~~~

But for those of you who wish I was dead right now (that'll be the folk currently munching on rice cakes and saying they're quite nice once you get used to them to anyone who'll listen), you'll be pleased to know that my cholesterol is still too high and I have to go on medication for it. My attempts to lower it through diet alone (ie-easing up on the cheese and fatty foods - in particular DUCK) only resulted in the levels of good cholesterol going down and the bad cholesterol going up slightly.

I take this as a sign that I should go back to what I was doing with the cheese and fatty foods - in particular DUCK. So if anyone wants me over the next week or so, look for me anywhere that does a nice yum cha.

~~~
splodgenoodles: (Lady Penelope's car.)
We just walked around the block. I am so unfit. Hard for [livejournal.com profile] tenbears too, but only because he's not used to shambling. He seemed to have trouble knowing where to put his feet because his legs weren't moving far enough.

It kills me that going round the block is such a challenge for me. And that I'm secretly hoping that maybe someday soon I'll be able to do such a walk a couple of times a week with no payback. (Actually, what really kills me is that I assume that being well enough to do that would mean I'd have to get a job, pronto, and I don't feel quite ready...when really, being well enough to walk round the block three times a week hardly equates to being well enough to go to work. Logically speaking, I'm sure I've got a little bit more time before I need to buy an interview outfit. Like maybe, forever.)

~~~

And I've done another Scary Thing, go me. This was made easier when the process of getting it done became so damned fiddly that I wasn't so much anxious about the whole metathinginess of the activity as bored and pissed off and just wanting the fucking thing finished, FFS.

So now it's done.

~~~

Got an email today to tell me that I am not fructose or lactose intolerant, hurrah! Pardon me while I jump into a bath full of CAKE AND WHIPPED CREAM. (Cake containing wheat flour, you see, and wheat apparently being a problem in the fructose thing, believe it or not. Besides, jumping into a bath full of fruit and whipped cream just wouldn't have the same appeal, would it? Cake is much nicer, fruit is dull and unsexy).

~~~

But for those of you who wish I was dead right now (that'll be the folk currently munching on rice cakes and saying they're quite nice once you get used to them to anyone who'll listen), you'll be pleased to know that my cholesterol is still too high and I have to go on medication for it. My attempts to lower it through diet alone (ie-easing up on the cheese and fatty foods - in particular DUCK) only resulted in the levels of good cholesterol going down and the bad cholesterol going up slightly.

I take this as a sign that I should go back to what I was doing with the cheese and fatty foods - in particular DUCK. So if anyone wants me over the next week or so, look for me anywhere that does a nice yum cha.

~~~
splodgenoodles: (angry moomintroll)
Last night, at about 3AM, I gave myself a needle-stick injury.

I'd given the cat her fluids, I coudn't find the doohicky to cap the needle, so I could not removed it safely.

So I tried to remove it unsafely, as evidenced by the fact that shortly after I started doing so, I had to pull the needle out of my right forefinger.

I must have hit a major vessel. There was very little blood, but within moments my right forefinger was bluish and slightly swollen. Also rather painful. It still is bluish and swollen, and the bruise has now spread into the palm of my hand.

I tried to bleed it a bit, because I once saw someone on telly do that when they got a needle stick injury courtesy of a drug addict, and then I gave it a wash with dettol because that's what my parents would have done. Then, thinking of snakebite treatment and the action of the lymphatic system, I decided to wrap my hand and forearm in the one bandage we own, so that I not move things too much, thus delaying the process of spreading cat venom lymphatic fluid throughout my own system. No reason to hasten my own death.

Then I went to bed, having decided the one really stupid thing to do would be to see what Dr. Google had to say about this sort of thing (and I still haven't looked, and have no intention of doing so for at least a week). Some things should simply not be done at 3AM.

Today I spoke to one of the other GPs at my GPs practice (she's not in today), and I'm already feeling much better thankyou. This is probably a safer injury than a cat bite. The cat mouth is full of bacteria, but the cat itself, not so much. Tetanus is a risk with dirt, there is no dirt inside the cat and the needle was, in that respect, probably quite clean.

But it's not entirely certain.

She did say that if things go red and infected in the next day it might be time for antibiotics. There is a problem here: crap immune system because of the drugs for Crohn's Disease means I'll have more trouble if I do get something, but Crohn's Disease makes taking antibiotics a huge problem because so many of them do so much damage to the Crohn's Disease affected gut.

But it doesn't seem that likely.

I have also rung the vet, they haven't called back yet. That was 10B's idea, he was surprised I didn't ring them first because of course, they'd be the ones to have experience of this sort of thing and the ones that probably know all about it.

So that was my night. Today I'm feeling a little cranky and hard done by. And annoyed at myself for being so monumentally stupid.


Oh, and the needle is still attached to the line, also quite annoying. I did find the doohicky and recapped it, but it's well and truly jammed.
splodgenoodles: (angry moomintroll)
Last night, at about 3AM, I gave myself a needle-stick injury.

I'd given the cat her fluids, I coudn't find the doohicky to cap the needle, so I could not removed it safely.

So I tried to remove it unsafely, as evidenced by the fact that shortly after I started doing so, I had to pull the needle out of my right forefinger.

I must have hit a major vessel. There was very little blood, but within moments my right forefinger was bluish and slightly swollen. Also rather painful. It still is bluish and swollen, and the bruise has now spread into the palm of my hand.

I tried to bleed it a bit, because I once saw someone on telly do that when they got a needle stick injury courtesy of a drug addict, and then I gave it a wash with dettol because that's what my parents would have done. Then, thinking of snakebite treatment and the action of the lymphatic system, I decided to wrap my hand and forearm in the one bandage we own, so that I not move things too much, thus delaying the process of spreading cat venom lymphatic fluid throughout my own system. No reason to hasten my own death.

Then I went to bed, having decided the one really stupid thing to do would be to see what Dr. Google had to say about this sort of thing (and I still haven't looked, and have no intention of doing so for at least a week). Some things should simply not be done at 3AM.

Today I spoke to one of the other GPs at my GPs practice (she's not in today), and I'm already feeling much better thankyou. This is probably a safer injury than a cat bite. The cat mouth is full of bacteria, but the cat itself, not so much. Tetanus is a risk with dirt, there is no dirt inside the cat and the needle was, in that respect, probably quite clean.

But it's not entirely certain.

She did say that if things go red and infected in the next day it might be time for antibiotics. There is a problem here: crap immune system because of the drugs for Crohn's Disease means I'll have more trouble if I do get something, but Crohn's Disease makes taking antibiotics a huge problem because so many of them do so much damage to the Crohn's Disease affected gut.

But it doesn't seem that likely.

I have also rung the vet, they haven't called back yet. That was 10B's idea, he was surprised I didn't ring them first because of course, they'd be the ones to have experience of this sort of thing and the ones that probably know all about it.

So that was my night. Today I'm feeling a little cranky and hard done by. And annoyed at myself for being so monumentally stupid.


Oh, and the needle is still attached to the line, also quite annoying. I did find the doohicky and recapped it, but it's well and truly jammed.

CFS Link.

Oct. 23rd, 2009 11:26 pm
splodgenoodles: (Default)
Hilary Johnston's take on XMRV. She certainly makes clear the effect of the political stuff on human suffering pretty clear.

(Thanks [livejournal.com profile] braunie)

Like most of us, as far as XMRV goes, at this point I am 'watching with interest'.

CFS Link.

Oct. 23rd, 2009 11:26 pm
splodgenoodles: (Default)
Hilary Johnston's take on XMRV. She certainly makes clear the effect of the political stuff on human suffering pretty clear.

(Thanks [livejournal.com profile] braunie)

Like most of us, as far as XMRV goes, at this point I am 'watching with interest'.
splodgenoodles: (Default)
This year's Fluvax is now available.

The more of you healthy people that go get it, the safer I'll be. :-)
splodgenoodles: (Default)
This year's Fluvax is now available.

The more of you healthy people that go get it, the safer I'll be. :-)
splodgenoodles: (Default)
Avid stalkers may recall that I recently wrote about trying nasal irrigation, just with a syringe as explained here, to see if it might not prove to be a cheaper and possibly safer way of controlling my chronically stuffy sinuses than hideously expensive nasal spray (Rhinocort) that can eventually destroy your sense of smell and is just one more dose of a cortisone-based steroid that I'd rather avoid.

Point being, I just had a bit of a whirl at it. Used a 5ml syringe - our chemist don't have any bigger - and some tepid salt water.

And while my health status has not changed dramatically in the last 30 minutes, I do feel much like how I used to feel as a kid after a hot summer's day of near drowning experiences at Victoria's notoriously dangerous Koonya back beach. All I need are some burnt patches of skin and sand in my twat and I'm there.

So nice to feel young again.

My main concern is that what's supposed to happen is that you squirt the water into one nostril and it comes out the other but this does not seem to have happenned. It's all gone in and hardly any has come out, and even less from whichever nostril is supposed to be acting as the drain. It's just disappeared. And while I do have that summers day saltiness thing going on, I don't *feel* like I've swallowed several mouthfuls of Bass Strait. That's a much more icky feeling, believe you me.

Admittedly it was quite hard to get a proper vacuum seal around the nostril with the syringe in it, so some water leaked out there and down my arm (my PJ elbows are now wet), but I'm sure enough went in. And when nothing seemed to be coming out, I tried a few more times thinking maybe I just needed to reach critical mass, but nothing's happenned yet.

So I'm waiting for a sudden gush. Still. My hopes are fading.

I suppose it was silly to be hoping for fountains, but I must say this is quite a let down.

On the plus side, maybe things were just really dry in there and my sinuses were simply hanging out for a good drink.
splodgenoodles: (Default)
Avid stalkers may recall that I recently wrote about trying nasal irrigation, just with a syringe as explained here, to see if it might not prove to be a cheaper and possibly safer way of controlling my chronically stuffy sinuses than hideously expensive nasal spray (Rhinocort) that can eventually destroy your sense of smell and is just one more dose of a cortisone-based steroid that I'd rather avoid.

Point being, I just had a bit of a whirl at it. Used a 5ml syringe - our chemist don't have any bigger - and some tepid salt water.

And while my health status has not changed dramatically in the last 30 minutes, I do feel much like how I used to feel as a kid after a hot summer's day of near drowning experiences at Victoria's notoriously dangerous Koonya back beach. All I need are some burnt patches of skin and sand in my twat and I'm there.

So nice to feel young again.

My main concern is that what's supposed to happen is that you squirt the water into one nostril and it comes out the other but this does not seem to have happenned. It's all gone in and hardly any has come out, and even less from whichever nostril is supposed to be acting as the drain. It's just disappeared. And while I do have that summers day saltiness thing going on, I don't *feel* like I've swallowed several mouthfuls of Bass Strait. That's a much more icky feeling, believe you me.

Admittedly it was quite hard to get a proper vacuum seal around the nostril with the syringe in it, so some water leaked out there and down my arm (my PJ elbows are now wet), but I'm sure enough went in. And when nothing seemed to be coming out, I tried a few more times thinking maybe I just needed to reach critical mass, but nothing's happenned yet.

So I'm waiting for a sudden gush. Still. My hopes are fading.

I suppose it was silly to be hoping for fountains, but I must say this is quite a let down.

On the plus side, maybe things were just really dry in there and my sinuses were simply hanging out for a good drink.

Cats.

Oct. 12th, 2007 02:02 pm
splodgenoodles: (Default)
Our tumbledryer has stopped working. It still dries clothes same as always, but when I flicked it on earlier, OutsideCat did _not_ scramble off her little cat bed and scamper outside like she's supposed to, which means it's not working properly. Quelle annoyance! How to get the cat out now? We may have to invest in some kind of catapult.

Catapult! I am on fire.

~~~

Dear Outsidecat, she's such a sweetie. And such a ... cat. No other word for her really. I was reaching into her special laundry cave and patting her and of course, the moment she realises you are gently trying to pull her out, she retreats further in. If she thinks you want her to go to the right she goes to the left, and so on. And alas, clearly she now knows that the tumbledryer is not a kitty eating monster but an unsubtle attempt to lever her from her bed and therefore must be ignored.

Fortunately, even though she's no longer scared of it she doesn't like the noise much so she did saunter out at her leisure a short time later.

We have her inside, albeit just in the laundry, a lot more these days. She's getting old and I think she really needs the heated cat bed now. She's less able to deal with other cats and perhaps most importantly, we're aware that it's not going to be too long before we're going to have to be giving her nightly medication of some sort or another so a habit of coming inside for food and shelter needs to be encouraged.

Our beloved InsideCat is now on three pills a night plus antibiotic paste (I wish more of these things came in paste form). That might sound a little dire, but she's still a very happy cat. She was a gorgeous kitten, a delightful and insane adult cat, and now she's a beautiful old dame. She now lets us carry her round the house and seems quite unfussed by it, where once she'd take your arm off if you tried. So we carry her around, we feed her treats, we activate the sleepatron when we get up so she can stay warm (old cats really feel the cold), and we generally just treasure her and treat her like royalty.

~~~

In other news, still feeling this extra sick thinginess. Blah. I'm not sure whether I'd prefer this crash to be a virus or a drug reaction. A drug reaction could be fixed sooner, but is inconvenient in other ways. If it's a virus, lord knows when I'll be back to the picture of health (hahahah) I was not a week or so ago but hey, the psych drug will kick in and maybe I just won't care...

~~~

I am still waiting to hear about that drug trial, I thought I would have heard by now. The waiting is really getting on my nerves.

Cats.

Oct. 12th, 2007 02:02 pm
splodgenoodles: (Default)
Our tumbledryer has stopped working. It still dries clothes same as always, but when I flicked it on earlier, OutsideCat did _not_ scramble off her little cat bed and scamper outside like she's supposed to, which means it's not working properly. Quelle annoyance! How to get the cat out now? We may have to invest in some kind of catapult.

Catapult! I am on fire.

~~~

Dear Outsidecat, she's such a sweetie. And such a ... cat. No other word for her really. I was reaching into her special laundry cave and patting her and of course, the moment she realises you are gently trying to pull her out, she retreats further in. If she thinks you want her to go to the right she goes to the left, and so on. And alas, clearly she now knows that the tumbledryer is not a kitty eating monster but an unsubtle attempt to lever her from her bed and therefore must be ignored.

Fortunately, even though she's no longer scared of it she doesn't like the noise much so she did saunter out at her leisure a short time later.

We have her inside, albeit just in the laundry, a lot more these days. She's getting old and I think she really needs the heated cat bed now. She's less able to deal with other cats and perhaps most importantly, we're aware that it's not going to be too long before we're going to have to be giving her nightly medication of some sort or another so a habit of coming inside for food and shelter needs to be encouraged.

Our beloved InsideCat is now on three pills a night plus antibiotic paste (I wish more of these things came in paste form). That might sound a little dire, but she's still a very happy cat. She was a gorgeous kitten, a delightful and insane adult cat, and now she's a beautiful old dame. She now lets us carry her round the house and seems quite unfussed by it, where once she'd take your arm off if you tried. So we carry her around, we feed her treats, we activate the sleepatron when we get up so she can stay warm (old cats really feel the cold), and we generally just treasure her and treat her like royalty.

~~~

In other news, still feeling this extra sick thinginess. Blah. I'm not sure whether I'd prefer this crash to be a virus or a drug reaction. A drug reaction could be fixed sooner, but is inconvenient in other ways. If it's a virus, lord knows when I'll be back to the picture of health (hahahah) I was not a week or so ago but hey, the psych drug will kick in and maybe I just won't care...

~~~

I am still waiting to hear about that drug trial, I thought I would have heard by now. The waiting is really getting on my nerves.

Monday 2.

Oct. 8th, 2007 11:04 pm
splodgenoodles: (Default)
I am so sick of pills, potions, interactions and side effects. I'm really sick of pacing and monitoring and grading activity and excercising self-discipline. And I'm even more sick of discovering, time and time again, that if I don't pay heed to these things I get very sick indeed.

~~~~

In other news, I'm trying to knit a lacy scarf. Bit of a learning curve, I must say. I realised very quickly that being on this learning curve while using the actual 2-ply, dark blue, silk/wool mix that I bought for the project was only ever going to end in tears, so I'm doing a practice run in bright yellow 8-ply wool first. This has proven to be a very sensible idea because although I'm progressing in leaps and bounds I'm still falling over quite a bit.

I have realised that I understand patterns better visually. Give me a written list of instructions and I lose count and mess up. Give me a chart and I'll still mess up every now and again but I'll progress a lot faster in between mistakes and understand my mistakes a lot quicker too.

And I'm half wondering if I shouldn't do the actual scarf in a lighter colour just to make it easier on myself. The lacy effect would be more apparent in a lighter colour too.

~~~~

Monday 2.

Oct. 8th, 2007 11:04 pm
splodgenoodles: (Default)
I am so sick of pills, potions, interactions and side effects. I'm really sick of pacing and monitoring and grading activity and excercising self-discipline. And I'm even more sick of discovering, time and time again, that if I don't pay heed to these things I get very sick indeed.

~~~~

In other news, I'm trying to knit a lacy scarf. Bit of a learning curve, I must say. I realised very quickly that being on this learning curve while using the actual 2-ply, dark blue, silk/wool mix that I bought for the project was only ever going to end in tears, so I'm doing a practice run in bright yellow 8-ply wool first. This has proven to be a very sensible idea because although I'm progressing in leaps and bounds I'm still falling over quite a bit.

I have realised that I understand patterns better visually. Give me a written list of instructions and I lose count and mess up. Give me a chart and I'll still mess up every now and again but I'll progress a lot faster in between mistakes and understand my mistakes a lot quicker too.

And I'm half wondering if I shouldn't do the actual scarf in a lighter colour just to make it easier on myself. The lacy effect would be more apparent in a lighter colour too.

~~~~
splodgenoodles: (Dahliablue's icon)
Last night, there was a segment on ME/CFS on JTV.

I got teary watching this. As it happens I'm having a crappy day on a few levels and it was nice, for once, to see a mainstream(ish) segment that didn't fuck up. (Although I thought the sight of sufferers in bed reading books was pretty funny. They should have quizzed them on the contents.)

They even looked at the name change and definition stuff and they were succinct and clear.

If you wish to have a look, it goes for just over 7 minutes.

Here.

Thanks.


Do you know I still hope for an alternative diagnosis? This is a crap place to be.
splodgenoodles: (Dahliablue's icon)
Last night, there was a segment on ME/CFS on JTV.

I got teary watching this. As it happens I'm having a crappy day on a few levels and it was nice, for once, to see a mainstream(ish) segment that didn't fuck up. (Although I thought the sight of sufferers in bed reading books was pretty funny. They should have quizzed them on the contents.)

They even looked at the name change and definition stuff and they were succinct and clear.

If you wish to have a look, it goes for just over 7 minutes.

Here.

Thanks.


Do you know I still hope for an alternative diagnosis? This is a crap place to be.

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